You ever feel like you could really use a hug???
Here's my story: I have been having "sinus headaches" for about a week and a half and they have been getting progressively worse. I have tried Benadryl, Nyquil, Dayquil, Tylonel, etc... but after a while, nothing was even touching the pain. I had a bit of a cough too that would send me into some coughing fits every once in a while, but I didn't have a runny nose or any other symptoms either. I just figured my allergies had given me a sinus infection. By Thursday (yesterday), I was about fed up with the pain and just felt like banging my head against a wall to get some relief. I called my oncologist and he ordered an antibiotic and a CT scan for the following week or so, whenever they could get me in. But as the day progressed, so did my headache. I decided to ditch the waiting game and headed over to the ER. I have been there before and it is great for diagnostics. I got a CT scan and they scanned my lungs as well. Soon the doctor came in to tell me that they found pnuemonia-like presence in my lungs, but that the headache must just be allergies. he said I could just go home and try some allergy medicine and take an antibiotic for the pnuemonia. Then he looked at the report for about 30 seconds just to verify what he had said, and then his head came up with a stunned expression. "What a minute.... they found something on your right frontal lobe of your brain. Nevermind, your not going home. Let me get on the phone with the nuerosurgeon." And he was gone. They decided to get an MRI to get to the bottom of the brain issue. I only cried a little bit while in the MRI tube, but I made it through (I HATE MRI's, they are soooooooooooo clostraphobic!). But it needed to be done, so I just pretending that I was on a beach with my parents who got to Hawaii yesterday, and the banging was just the Polynessian drums as they celebrated. I haven't ever been to Hawaii, so it was a stretch, but it worked. Last time I had an MRI, I bribbed myself with ice cream. Whatever works!!!
Anyhow, they decided to admit me to the hospital and at midnight we reached our room on the Oncology floor. After a fitful night of sleeping, the nurse came in at 4am and asked me how I had sleept. I told her the night was still young, and I planned to sleep some more, thankyouverymuch!
At 7am, my Oncologist came in to give me the news..."The MRI shows multiple cancer tumors throughout your brain. I hate to be the one to tell you this...(expression never changing...it never does). We can't give you chemo because it can't pass the blood/brain barrier, but we will start you on whole brain radiation immediately. I called off the nuerosurgeon, because the amount of tumors make them inopperable. But, radiation to the brain is pretty successful, about 80% success rate. So that is good." (expression not changing). He explained that basically we will be fighting the cancer fight on two fronts, the brain as one battle and the soft tissue with the lungs, heart, and stomach as another. The cancers will take seperate medicines and I am also taking heavy antibiotics for the pnuemonia and a gram positive cocci they found in my blood. (I did my research and they are still trying to figure out if it is a staph infection or a strep infection, they just give it the "gram-positive cocci name to confuse you.")
Let me just hurry and finish the update. Then onto pee, and bed.................
My older sis, Alisha came by the hospital in the afternoon to give me a needed hug and check in on my. My little sister Becky watched a "pink-eyed" Sarah all day, and I BEGGED my parents to stay in Hawaii and not hop the next flight home. They have never been on a long relaxing trip like this and I hope they have a glorious time and bring back lots of pictures. Pictures of other places are very theraputic for me!!!
And this was my LEAST favorite part of the day when I got fitted for my custom head mask for radiation. This pastic material goes on your face very hot and I tried to jump right up, but you are bolted to the table. After a few seconds, the heat wore off and then after a few minutes of cholostrophobia, they take off the mask... of you! It is crazy! Then you wear this mask into the radiation chamber room and they buckle your head to a table so you don't move your brain at all. Soooooooooooooooooo not fun, but it is all over in the space of five minutes. I will get 10 days of this radiation, so not as bad as the chest radiation (34 days).
That is all for now, now you know exactly how much I know (which isn't all too much). I am hopefully going home tomorrow, but everything is still up in the air. I love you all very, very much and feel your prayers and thought in my small room.................
No time to edit tonight, so just excuse any gramatic errors (even though it is a huge pet peeve of mine when I make any grammatic errors!)