This post will contain ramblings at best and probably nonsense or pig Latin at worst.
It is 12:30am after a long day of chemo and exhaustion, and now I sit here, not being able to sleep. Oh, the irony that is cancer! I started a new chemo medicine today that has more side effects than the last med. The one I am LEAST looking forward to is losing my hair again. I know that is petty and really doesn't matter in the scheme of things, but it matters to me. It is my connection with "normal". It is the separation of being accidently called "sir" in a department store, no matter how many necklaces I wear! And the worst part is, I know that the kids hate it as well. Yeah sure, they are just glad to have me around, but when it comes right down to it, I know they are embarrassed by how I look when I am bald. How everyone "notices" me in stores and makes "nice" comments about how I need to keep fighting, and want to talk all about cancer and how many people/relatives/friends they know who have had cancer and more importantly who has died from cancer.
I have had people come up to me with the best intentions and say, "if the Lord calls you home, it must be your time to go." And on one rough day, I responded, " I think the Lord is calling YOU home!!!" (not the most polite answer, I need to work on that!) Anyway, I just think that so many side effects of my cancer I can pretty much "hide" from the world and all they see is a busy mother toting 4 kids around. But when it comes to the hair, its just too hard to hide. And yes, I have tried wigs and I think you all need to try to wear a itchy polyester thing covering your entire head when the heat rises to 120 degrees here in Phoenix. It is just as fun as it sounds!
I can still remember over two years ago, the very first time I went into "public" with my hat on and no hair. I entered Target and not five minutes into my excursion a 4-year-old stopped in the aisle right in front of me, blocking my path. He pointed to me and loudly declared, "Look mom, that lady has NO hair! That is funny!" And as I looked for the nearest hole to crawl into, my heart also went out to that poor mother. I mean her kid was only telling the truth, can you really punish him for that! And actually I much prefer the kids to the adults who constantly stop my progression down the aisle and want to "talk to me". It really is hard for my kids as well because ALL the attention is focused on mom. Oh poor mom!! Wahhh! Wahhhh! My kids can perform a circus in front of them (and often do), and all the stranger sees is me, with the bald head and death sentence. I think I have decided that if this chemo works, I will put down the big bucks and get a "real" wig made from "real hair" that is soft and looks, well....."normal". And really, I do this mainly for my kids' sake and the sake of others, so we can all just get on with life.
I think I have laid too much seriousness on your plate for one night, so I will exit stage left.
P.S. The caption about Benadryl is because I really like the feeling of getting Benadryl put in my port right before chemo. I know this is petty, but since my port goes straight to my jugular vein in my neck, the response from the Benadryl is INSTANT! Today I was doing some research on my computer when the Benadryl hit me and I looked up and said, "oh, it's the Benadryl", and instantly my mind went from being in control and intelligent to fuzzy and losing consciousness. I put aside my computer and said, " I think I will take a nap now" and immediately laid my chair back. They brought my lunch right then and I just looked at it because there was no way I could get my mouth to chew up and down for any period of time now. Good ridance food. Good ridance anyone else who was trying to have a polite conversation with me........ Benadryl controls my world. (And that means I don't have to!Smile!).............Goodnight~
P.S.S. I just wish I could get some of that stuff at home at night when I am laying awake in my bed reading away the hours. Regular Benadryl just doesn't do it. I mean who has time to wait for your stomach to disolve the pill, etc,. etc.